Oh, the irony....

Two wonderful events are happening right now -

1. May 10-15 is Retinoblastoma Awareness Week! Be sure to spread the word about Rb, signs and symptoms, and family experiences

2. May is also VHL Month! As you may know, when we got Joli's genetic testing done for Rb, we also found out that she has VHL, a genetic condition involving the abnormal growth of blood vessels in parts of the body, resulting in angiomas or hemangioblastomas (tumors). Most tumors develop in the brain, spinal cord, retinas, and kidneys.

Just yesterday, I (Liza) found out that I, too, have VHL. Jorge and I were both tested for the disesase, and he came back negative; I came back positive. So, not only do I have BRCA to deal with, I now also have VHL.

In the words of Grace, "Oh greayyyytttt....."

It's a personal choice for the rest of my family to get tested or not; really, there isn't anything one can do about it. And, in going through the family tree, no one has really had any symptoms (that we know of) related to VHL.

So, let's just pray that neither Joli nor I have any affected symptoms.

Do we get Jada and Evan tested? We're not in any rush right now, but we'll have to decide sooner than later.