Hi, everyone! Thanks to all the friends and "friends-of-friends" who have been checking Joli's site lately. The fundraiser recently ended, and hundreds of Thank You letters have been sent (which is maybe why people are checking). I did my absolute best to try and send a letter to everyone -- but to get all the names and addresses accurate seems nearly impossible. So, if you check this site and didn't get one, please know that we are forever thankful for your support and help!
Joli is in the hospital right now getting chemo Round 4. This was a very interesting hospital stay -- we actually met 2 other children who have retinoblastoma!! It was semi-planned (sort of) to meet. Joli was scheduled for chemo, and a little girl from Rhode Island was heading to Boston for her yearly exam. There was also a family from Arizona (yes... Arizona!) who was there doing proton beam radiation (Joli didn't have this... the point of PBR is to save vision in the eye.. she was way too late). We all met at the Yahoo online support group, and happened to all be there at the same time! So, Joli met 2 other kids with prosthetic eyes who had the same exact cancer as she does! So awesome!!! (well.. not awesome that they all have Rb... but you know what I mean!).
The hospital staff put together an amazing Christmas party for the kids.
You know all those times you donate at church for "the giving tree" or whatever? Well, we actually got to see what it was like to be a recipient for that generosity. "Santa" gave Joli 2 presents and even addressed her name on them! She was a bit freaked out about Santa, but had no problem chowing down the chocolate cake!
I'm exhausted. This is a pretty tough job pregnant! But, we're psyched that Joli is healthy, that we have amazing friends, and that we have each other!
Love, Liza
Joli's BEAUTIFUL SIDE PROFILE (of her prosthesis!)
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